REVIEW PAPER
Continuity of monitoring the rheumatic diseases course in patients after 18 years of age
– the point of view of internist
Online publication date: 2013-03-05
Reumatologia 2013;51(1):45-50
KEYWORDS
ABSTRACT
Adolescents and young patients may have ongoing problems with active rheumatic diseases, particularly with juvenile idiopathic arthritis. They require continuation of care and transfer from pediatric to adult services. The process of “transition” ought to include collaboration between pediatric and adult healthcare providers as well as involvement the young people themselves. The exact documentation is crucial for transitional care.
REFERENCES (33)
1.
McDonagh JE, Shaw KL, Southwood TR. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care 2006; 10: 22-42.
2.
Shaw KL, Southwood TR, McDonagh JE, on behalf of the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in rheumatology: transitional care and quality of life in a multicentre cohort of adolescents with juvenile idiopathic arthritis (JIA). Rheumatology 2005; 44 (Suppl 1): 92.
3.
Bailey KM, McDonagh JE, Prieur AM. Systemic juvenile idiopathic arthritis presenting in a young child with long term disability as an adolescent. Ann Rheum Dis 2004; 63: 1544-1548.
4.
Nistala K, Woo P, Wedderburn LR. Juvenile Idiopathic Arthritis Kelley’s Textbook of Rheumatology Eight Edition. Firestein GS et al. (eds.). Saunders Elsevier, Philadelphia 2009; 1657-1675.
5.
Robertson LP, McDonagh JE, Southwood TR, et al. Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from pediatric to adult centred care. Ann Rheum Dis 2006; 65: 74-80.
6.
Foster H. The young adult with juvenile idiopathic arthritis – key clinical issues. Ann Rheum Dis 2012; 71 (Suppl 3): 4.
7.
Castrejón I. Transitional care programs for patients with rheumatic diseases: review of the literature. Rheumatol Clin 2012; 8: 20-26.
8.
Ozen S, Southwood T. Juvenile idiopathic arthritis. EULAR Compendium on Rheumatic Diseases. Bijlsma JW (ed.). BMJ Publishing Group and European League Against Rheumatism 2009; 216-229.
9.
Hilderson D, Westhovens R, Wouters C, Moons P. Transitional care for adolescents with rheumatic diseases: urgent need for more research. Child Care Health Dev 2008; 34: 401-402.
10.
Sudoł K, Moskalewicz B. Długoterminowa opieka w przewlekłych chorobach reumatycznych – przejście od wieku młodzieńczego do opieki dla dorosłych. Reumatologia 2008; 46: 290-294.
11.
Wallace CA, Huang B, Bandeira M, et al. Patterns of clinical remission in select categories of juvenile idiopathic arthritis. Arthritis Rheum 2005; 52: 3554-3562.
12.
Martini A. It is time to rethink juvenile idiopathic arthritis classification and nomenclature. Ann Rheum Dis 2012; 71: 1437-1439.
13.
McDonagh JE, Shaw KL. Adolescent rheumatology transition care in the UK. Pediatr Ann 2012; 41: e8-e15.
14.
Guillaume S, Prieur AM, Coste J, Job-Deslandre C. Long-term outcome and prognosis in oligoarticular-onset juvenile idiopathic arthritis. Arthritis Rheum 2000; 43: 1858-1865.
15.
Ozdal PC, Vianna RN, Desche^nes J. Visual outcome of juvenile rheumatoid arthritis-associated uveitis in adults. Ocul Immunol Inflamm 2005; 13: 33-38.
16.
Zak M, Pedersen FK. Juvenile chronic arthritis into adulthood: a long-term follow-up study. Rheumatology 2000; 39: 198-204.
17.
Ionnaou J. ERA in the adolescent age: one or two diseases. Ann Rheum Dis 2012; 71 (Suppl 3): 4.
18.
Lovell DJ, Giannini EH, Reiff A, et al. Etanercept in children with polyarticular juvenile rheumatoid arthritis. Pediatric Rheumatology Collaborative Study Group. N Engl J Med 2000; 342: 763-769.
19.
Ruperto N, Lovell DJ, Cuttica R, et al.; Pediatric Rheumatology International Trials Organisation and the Pediatric Collaborative Study Group. A randomised placebo controlled trial of infliximab plus methotrexate for the treatment of polyarticular-course juvenile rheumatoid arthritis. Arthritis Rheum 2007; 56: 3096-3106.
20.
Solari N, Palmisani E, Consolaro A, et al. Predictors of achievement of inactive disease in children with juvenile idiopathic arthritis treated with etanercept. Ann Rheum Dis 2012; 71 (Suppl 3): 53.
21.
Brózik H, Smolewska E, Biernacka M i wsp. Gorączka reumatyczna – choroba zapomniana. Piediatr Pol 2002; 8: 641-647.
22.
Szczygielska I, Hernik E, Rutkowska-Sak L i wsp. Gorączka reumatyczna – choroba, która nadal istnieje. Reumatologia 2008; 46: 295-299.
23.
Zimmermann-Górska I. Choroby tkanki łącznej uwarunkowane genetycznie. W: Interna Szczeklika 2012. Medycyna Praktyczna, Kraków 2012.
24.
Zimmermann-Górska I. Nadmierna ruchomość stawów a choroby reumatyczne. Reumatologia 2007; 45: 397-403.
25.
Woo P. Systemic juvenile idiopathic arthritis: diagnosis, management, and outcome. Nat Clin Pract Rheumatol 2006; 2: 28-34.
26.
Lawson EF, Hersh AO, Applebaum MA, et al. Self-management skills in adolescents with chronic rheumatic disease: a cross-sectional survey. Pediatr Rheumatol Online J 2011; 9: 35.
27.
Oen K, Malleson PN, Cabral DA, et al. Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. .
29.
Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology (Oxford) 2002; 41: 1428-1435.
30.
Tucker LB, Cabral DA. Transition of the adolescent patient with rheumatic disease: issues to consider. Rheum Dis Clin North Am 2007; 33: 661-672.
31.
Minden K. Data collection for adolescents with arthritis: how make it cool. Ann Rheum Dis 2012; 71 (Suppl 3): 4.
32.
Żuber Z, Rutkowska-Sak L, Postępski J i wsp. Długoterminowa ocena bezpieczeństwa i skuteczności leczenia biologicznego młodzieńczego idiopatycznego zapalenia stawów – prezentacja polskiego rejestru elektronicznego. Reumatologia 2011; 49: 1015-1020.
33.
Żuber Z, Rutkowska-Sak L, Postępski J i wsp. Etanercept treatment in juvenile idiopathic arthritis: the Polish registry. Med Sci Monit 2011; 7: SR35-SR42.
Copyright: © Narodowy Instytut Geriatrii, Reumatologii i Rehabilitacji w Warszawie. This is an Open Access journal, all articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0) License (https://creativecommons.org/licenses/by-nc-sa/4.0/), allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material, provided the original work is properly cited and states its license.
Share
RELATED ARTICLE
| eISSN: | 2084-9834 |
| ISSN: | 0034-6233 |
We process personal data collected when visiting the website. The function of obtaining information about users and their behavior is carried out by voluntarily entered information in forms and saving cookies in end devices. Data, including cookies, are used to provide services, improve the user experience and to analyze the traffic in accordance with the Privacy policy. Data are also collected and processed by Google Analytics tool (more).
You can change cookies settings in your browser. Restricted use of cookies in the browser configuration may affect some functionalities of the website.
You can change cookies settings in your browser. Restricted use of cookies in the browser configuration may affect some functionalities of the website.
